After years of medical issues, my son, Jacob, was diagnosed with palatal myoclonus, an involuntary tremor disorder. Over time he developed pain that was debilitating. His symptoms continued to progress to other parts of his body. He was homebound and incapable of learning in school. The medical profession had little to offer him, but we chose not to give up. We tried everything we could find including medication, acupuncture, Ayurveda, changes in diet, Botox, surgeries, hypnotherapy, chiropractic manipulations, plus more. Some of our efforts failed and some succeeded--temporarily. Our search for a cure revealed he had more than one rare disease. There were other factors involved that caused his excruciating pain. With the help of strangers via social media, we diagnosed our son with Eagle syndrome. Subsequent events were inconceivable. When we thought we were finished, we started all over again. This is a true story of perseverance, suffering, love, courage, and a passionate desire to cure an impossible disease. We lived one day at a time, one hour at a time, one moment at a time--until that day when our child was pain-free.


Sherri Jonas, MBA, CPA (on inactive status), is a wife and mother of two. She has a sincere desire to share her son’s story with the intent to help others who are struggling with medical challenges. Navigating the medical profession can be overwhelming, especially when you are dealing with rare disease. Her son’s case has sparked interest in publication in medical journals. Sherri’s first book, Faith, Love, and Laughter: Mystery Diagnoses Unraveled, is a spiritual inspirational memoir that includes numerous other challenges that plagued their family. They have all been affected by tick-borne disease. Please visit her website at www.sherrijonas.com.