Kleine–Levin syndrome | kleine-levin syndrome stories

My "Sleeping Beauty" is 1 in a Million - diagnosed with Kleine–Levin syndrome, she will sleep for weeks when she is in an episode.SkiptoprimarynavigationSkiptomaincontentSkiptoprimarysidebarMenuofMusings|Kleine–LevinSyndrome,KLS,SleepBeautySyndrome|MySleepingBeautyis1inaMillionIhavealwaystoldmydaughterthatsheissoprettybecauseshegetsalotof “beautysleep”andhavejokinglycalledherSleepingBeautysinceshewasababy.Bothmykidsareamazingsleepersandhavebeensincebirth.Spencerwassleepingthroughthenightatonemonthandtaking4hournapsduringtheday.ThedoctorthoughtIwascrazycallinghimthinkingsomethingwaswrong!Alexcameintothisworldsleepingthroughthenight.Alexwouldfallasleepinherhighchairduringmeals,climbingupthestairstoherbedroom,etc.—whenshe’stired..shewantstosleep!Littledidweknowthatonedaytheterm“SleepingBeauty”woulddefineAlexinanotherway.WhenIsayshe’soneinamillionshetrulyis.Seriously,mydaughterisararebirdandthosewhohavemetAlexknowsherspiritcanonlybedescribedas“That’sAlex!”Alongwithherwittyandzestypersonalityshehassomethingelseuniqueabouther…shehastheSleepingBeautySyndrome,whichisknownbyit’smedicaltermasKleine–LevinSyndrome{akaKLS}.Kleine-Levinisararesleepingdisorderandtookusover2yearstofinallyfigureoutwhyAlexwouldsleepdaysonendandwhenshewasawakeherbehaviorisachild-likestonerzombietookoverherbody.Isaythisaswhenshewouldwakeupshewould“demand”foodinthevoiceofawhiny2yearold.Whilesheisinanepisodeshedisplaysthefollowingbehavior:Sleeps22+hoursadayHasnocomprehensionofsurroundingsorconversationsandeventhoughawake,she “inazone”{sleepwalker}Whenawakefocusesonaparticularfoodandthatisallshewants{stoner}Child-likewhenshewantssomethinganddoesn’tgetit{2yearold}Shuffleswhenshewalksthroughoutthehousewithherbodyalldroopy{zombie}AfewweeksbeforeherBIGepisode,AlexandherdaddressedasRomanGoddessesforHalloween2012.IlovethisphotoofherandwishedIhaduseda“real”camerainsteadofmycrappyiPhonetocapturethemoment.ThephotoabovewastakenatMaggiano’s{whereshewantedtogo}inDecember2012,about2weeksbeforeshewentintoan“episode.”Sh


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