A parent's guide to Kleine Levin Syndrome (KLS) - our story, leaflets, links, videos, research papers and more.KLSKLS-ourstory(current)Leaflets&DownloadsNews,Stories&VideosFundraisingforKLSTreatment&ResearchQ&ALifeafterKLSContactUsWhatisKleineLevinSyndrome(KLS)?Recurrenthypersomniaisadisordercharacterizedbyrecurrentepisodesofhypersomniathattypicallyoccurweeksormonthsapart.moredetailscanbereadonthisextractfromtheICSD.HowtosumupKLSinacoupleofwords-thatisimpossible.."Kleine-LevinSyndrome(KLS)isarareandcomplexneurologicaldisordercharacterizedbyrecurringperiodsofexcessiveamountsofsleep,alteredbehavior,andareducedunderstandingoftheworld.Thedisorderstrikesadolescentsprimarilybutcanoccurinyoungerchildrenandadults.Attheonsetofanepisodethepatientbecomesprogressivelydrowsyandsleepsformostofthedayandnight(hypersomnolence),sometimeswakingonlytoeatorgotothebathroom.Eachepisodelastsdays,weeksormonthsduringwhichtimeallnormaldailyactivitiesstop.Individualsarenotabletocareforthemselvesorattendschoolandwork.Inbetweenepisodes,thosewithKLSappeartobeinperfecthealthwithnoevidenceofbehavioralorphysicaldysfunction.KLSepisodesmaycontinuefor10yearsormore.KLSissometimesreferredtointhemediaas“SleepingBeauty”syndrome."KLSFoundationButthisshortvideobyTomoNews-doesagreatjob...OurjourneysofarwithKleineLevinSyndromeMysonbegantosleepmoreinAugust2011.Hewas13yearsoldandwewereonholiday,atfirstwethoughthebangedhisheadandhadconcussion,buthewasnotrightforalongtimeafterwards.TheAutumnwasalongdifficultbattletryingtofindoutwhatwaswrong.Hewasinepisodefornearly4months.InDecemberhewasdiagnosedwithKleineLevinSyndrome(KLS)hewasstillinthisepisode-hecameoutofitjustbeforeChristmas2011,hehadnomemoryofanythingsincethesummer.Thisisourjourney-Ihaveupdatedthispageastimehasgoneonwithinformationongettinghelpinschool,exams,driving,Jake'sdoctor's,fundraisingandmore....aswellascreatingotherpageswithinthesiteofusefulresources...pleasereadourstory,ifyouhaveKLSpleasegetintouchandifwecanhelpinanywayoransweranyquestions